Today we woke up late, we were supposed to be out of bed at 6, and got up at 7. I'd been awake since 4 so I don't know what I was thinking. So we rushed to breakfast and all my crazy appointments, and apparently we weren't the only ones running late!
So first after a LONG wait, and an EKG
we went to get my IV in. I wanted to put it in my hand because it will be left in for 3 days and I don't/am not getting a line. I had put numbing cream on in 3 different places at breakfast,
I've been really blessed with needles today. I think I'm getting the ability to handle them a lot better. It's just a little uncomfortable in my arm having (choosing) to write this!
It has to be in for 3 days because they need a 1 hour, 2 hour, 4 hour, 8 hour, 24 hour, and 48 hour sample of my blood. (I think that's all)
Moving on! I met with some new lady about life. Fortunately her job is to make sure things run smooth for me, and I didn't feel depressed talking to her! She was such a sweet lady, I was really nervous for the questions I was supposed to answer, but they actually made me feel better about my quality of life. Even though my side affects are worsening fast, things could be a whole lot worse.
We then had lunch. It was the first time I've tried lamb before. I loved it!
It''s probably a really good thing my appetite is gone.
There at that time was some sad (private) news in my extended family. (No questions please:)) but I was really kind of terrified for a moment, then I felt the spirit really strong around me. The most peaceful feeling in the world.
At 1:05 PM I started Chemotherapy! It's oral. I'm on a study with "Crenolanib" Good news: it didn't make me throw up! (yet.) Bad news: It makes me feel morbidly obese! I feel like a bloated, beached whale. Fortunately I am on nausea pills. So we're just going to try to endure this one! This is me taking my very first chemo pill!
I was elated to finally hit what I consider to be my starting line. It's been a hard thing knowing I'm going to have to fight cancer, but haven't really been able to do anything besides take steroids which only change my appearance dramatically. But after this point I was so excited, I crossed the starting line at 1:05.
So basically I lounged in a hospital bed and watched the Andy Griffith show with Diane all day. Well mostly slept. But still.
Next I started radiation! We got a blood test, and then went downstairs. So we got my music playing, my mask on, the lights off, and I had my first round (lasted around 15 minutes) of radiation (irradiation, whatever that means!) My hair smelt like it was burning. They said that was normal and next time to bring lifesavers to suck on. Luckily I've always been a fan and have TONS already so I popped one in right there and then and all was well! It is probably just mental anyways. I'm trying to not think about my hair for the next couple of weeks I still have it.
Dinner was hard. I don't feel the best stomach-wise right now so I was able to eat some chicken noodle, and a Popsicle. I have never enjoyed a Popsicle more in my life than I did tonight.
Next I just napped. I was a little on the grumpier side. I've never been more tired in my entire life when I was woken up for my next blood draw and EKG.
We were able to relax until the final blood draw of the day. What a relief! I felt a little more energized. So after about 12 hours in the clinic, we went to the grocery store (my idea). After two minutes in the produce section I felt like I was going to die I was so tired. But we got some essentials, and headed back to the Ronald McDonald house where we are now. And so ready to sleep.
Thank you so much for all the things you guys have done and said to me. I don't know what I would do without you guys. Everyone of you is such a blessing and a miracle in my life. I love you so much! Even if we don't know each other personally.
PS: This is a link to a talk one of the leaders in my church gave. (Not me trying to preach!) It has just helped me so much through my life. And it has brought more meaning than ever in my life and current situation. Take what you want from it, even if you're not religious it has some great advice and humor, (everyone needs a good laugh)