Monday, December 30, 2013
Sunday, December 22, 2013
# 1 I'm highly offended. Just cause someone has brain cancer does not mean they are insane.
#2 If you don't think there are perks to having cancer or any other trial life might throw at you, you are arrogant selfish and blind.
Open your eyes, there are blessings everywhere, if you weren't busy feeling sorry for yourself maybe you could recognise that your life is just one big perk
Nobody wants to be told they have cancer, or 9 months to live. But we learn to deal with it. And even though we may never be able to completely overcome it, we learn to find blessings (perks) along the way.
I've been through Hell and back this last year. But I've also been to Hawaii, made it 7 months past when I was supposed to die, been indoor skydiving, Disneyland, in a hot air balloon, in magazines, on tv, had my own race, met amazing people, been to multiple new states. Lost a lot of friends, family and hair. But I've learned a lot more than I have lost and that is what matters. And if you were to open your eyes for a second, you would realize those are perks.
Tuesday, December 10, 2013
These last 16ish months have been pure Hell, but pure happiness at the same time. That's why I'm grateful for my life, and I don't always act like I am. I'm grateful that I have every opportunity to be happy. Today I made a promise to myself to keep my eyes peeled for blessings, because sometimes the little things really are the big things (cliche I know,) but as a wise company (Charmin Ultra) so wisely stated, sometimes less is more. (HAHA) But sometimes I think we stare at what seem to us to be the "big things" so intensely that when we take a second to think our mind is all out of proportion, and our perspective is distorted. (I know this is a very Thanksgiving way to think, but they always say to have the mindset all year, and I never do, so now I am!)
Anyways, Thanksgiving was amazing. I love being with my family, but what I love even more than I love Thanksgiving, is Christmas. I really can't display my love for Christmas through words. But I love it. I love the snow, and the way it crunches. I love hot chocolate (even though I'm don't eat sugar:/) And I love most of all the... music, but really, Mariah Carrey, am I right? Hahaha no, most of all I love the family and love the love. I'm grateful for everything everyone has done for me. I've been so blessed, and I am going to start acting like it!
There you have it. A crazy thought, out of my crazy tumor-ridden brain!
Thanks for reading and always checking in.
I can do hard things! (Do I even need to say it anymore? haha)
Also I was going to put up some pictures, but my laptop is being stubborn! So I'll add them later, thanks!
Wednesday, November 13, 2013
Rewind: back to the day when I still had long hair! I cut it, but don't yet have decent pictures to put on the world wide web.
Thursday, September 26, 2013
"I wanted to reach back out to you and let you know about a campaign that my wife and I have put together with the help of the Mesothelioma Cancer Alliance. September 26 is Mesothelioma Awareness Day, and we are trying to get 7200 voices talking and sharing about this rare cancer, to represent the 7200 hours that the average mesothelioma patient has to live.
As my wife is a rare survivor of mesothelioma, this day obviously means a lot to us. We aren’t asking for time, money, or donations of any kind, just voices to spread the word about this awful, and sadly little known cancer. I was hoping that you would help support our cause by posting a link to our campaign page, so that your readers can use their voices as well!
Here is the link, please let me know what you think when you get a chance to take a look. Your help would mean the world to us!
I'm sure everyone that reads my blog, can agree that cancer is awful in general, but especially if it could be prevented. Please help these friends of mine by sharing the word of Mesothelioma, especially today, bein Mesothelioma day and all!
GOOD LUCK HEATHER AND CAMERON. Prayers and good wishes are with you from me and followers of my blog!
Anyways, I haven't updated forever, and thought this would be the perfect opportunity as I had the night off! About two weeks ago I had my MRI:
They say everything looks normal in my back, BUT my brain tumor did grow, and needless to say, I am extremely scared. So please send a prayer my way. I started and finished my first round of Chemotherapy. It's an oral Chemo, which I take 5 out of every 28 days. It is called Temodar, or Temozolomide (or something like that).
Atleast it's oral, but any chemo stinks. I have 23 day breaks, but I still don't know if it is working or not, and the whole thing is just scary.
Anyways that is what is new with me. Besides cancer in my life, I still have dreams, goals and ambitions (shocking I know) So I do have three part time jobs, and I am doing online school through BYU and I am going to 2 Institute classes. I may have cancer, but I'm definitely not going to let it stop me. Thank you to everyone who is making this life possible for me, and who continues to support and cheer me on, even though it feels like this fight is everlasting.
Oh and I am playing the piano at a benefit concert this weekend on Saturday for Teal's the Deal (a cervical cancer awareness group) everyone feel free to come support a good cause and see what should be an amazing performance. Thanks!
Tuesday, August 20, 2013
Friday, August 9, 2013
August 9th, 2012 Diagnosed with Diffuse Intrinsic Pontine Glioma on my Brain Stem
August 19th, 2012 Moved to Memphis, TN to be treated at St. Jude Children's Research Hospital
August 28th, 2012 Started Chemotherapy and Irradiation-30 rounds of Irradiation, and 270 rounds of Chemo
October 9th, 2012 Moved home from St. Jude's
June 4th, 2013 Diagnosed with a Glioblastoma on my spine L4 L5 and S1
June 6th, 2013 Removal surgery of the Glioblastoma tumor they diagnosed me with
June 17th, 2013 Removal of 29 staples in my back
July 8th, 2013 Started 1/27 round of Radiation
August 9th, 2013 CANCERVERSARY and three radiation treatments left!
August 10th, 2013 WHO KNOWS!?
One of the child life specialists I met with when I was first diagnosed, after telling me what all about my life would change, and how life would be different, asked me if I had any questions for her. So naturally, me being my curious self I asked her "When I'm going to get my life back and be a normal kid again?" And she replied "Honey, life as you know it, is never going to be the same. Everything from now on is going to be very much different. You're going to have all your old problems that most kids your age have, but you're going to have it a lot harder with this on top of everything else. Nothing will be the same."
When she said that, it kind of hurt! Here I am trying to be a normal 17 year old, and she came in and rained on my parade! But I was looking for honesty!-Just not so brutal...
Anyways, what does that have to do with anything? Everything- today I marked 365 days of being cancerous off my calendar, and for some of it I have gotten to feel like a normal teenager, who still gets to do normal things, and that's only because the help I've so generously been given, between my friends, family, blog supporters, doctors, and many more.
I'm only three treatments away from finishing this round of radiation, and I haven't thrown up once or anything! Must be cause of my amazing doctors at the Huntsman Cancer Radiation Center in Provo! I will be starting chemotherapy soon, and will be doing it orally again (PRAISE THE HEAVENS!) it will be 5 days on 23 off!
So- to the Child Life Specialist who said I could never have my life back- you were very very wrong! And although my life has changed, and I have things hard, there are also so many blessings and opportunities that have come along with it.
I CAN DO HARD THINGS
ps my sister Heather got married! Here are some pics of the wedding! Welcome to the family Cody! WE LOVE YOU!