Monday, August 3, 2015

Now I know why old people are so grumpy. I feel horrible.  



          I got my hair cut. That's the most excitement that I've had in days.



35 comments:

  1. I am so sorry this part of your journey has been difficult. You have been brave, strong and joyful. Our Heavenly Father is waiting to embrace you with open arms. His love will keep you safe and protected. Good luck Rachel.

    ReplyDelete
  2. That may be true, but most old people also share the happiness that they receive. And that is something that you do all the time. It was a happy moment yesterday to see you at church. Love you lots.

    ReplyDelete
  3. You are amazing!! You make me laugh and cry every time you post. I really hope you know you are inspiring people all over the world with your humor and courage. Just hang on sweet girl. And keep telling people your mom hits you. I snorted diet coke when I read that. Love from Southern California. Xoxo

    ReplyDelete
  4. I love your new haircut❤️ You look beautiful!! Sending loving positive vibes your way!! You're an inspiration to many fighting the same battle, stay strong, Love from Ontario, Canada xoxo

    ReplyDelete
  5. You're so amazing and don't forget you can do hard things!

    ReplyDelete
  6. Prayers sent and blog followed! From one runner to another... It's not how fast you get there but the journey it takes... Hope you can run super soon!!!! Btw I love your dress and haircut... Cancer stinks but you can overcome it!!!! 💪🏻💪🏻💪🏻💪🏻👊🏻👊🏻👊🏻

    ReplyDelete
  7. You are such a special young women. You are in my thoughts and prayers.

    ReplyDelete
  8. I love your shirt!!! And I love your hair cut! Woo-woo. It looks like you were able to work on your quilt - I'm excited to see it finished!

    ReplyDelete
  9. I love your shirt!!! And I love your hair cut! Woo-woo. It looks like you were able to work on your quilt - I'm excited to see it finished!

    ReplyDelete
  10. I love your shirt!!! And I love your hair cut! Woo-woo. It looks like you were able to work on your quilt - I'm excited to see it finished!

    ReplyDelete
  11. I like your hair! They're so shiny, and they grew back so nice! As for the grumpy.... Be grumpy all you want sweetheart, you are always so strong, we can be strong for you when you feel like grumpy! A big kiss! Anna

    ReplyDelete
  12. Bless you sweet girl, I have a lot of Facebook friends praying for you. I think grumpy is allowed in your situation, I'm so sorry that you feel bad. Hang on in there love, it's Friday but Sunday's coming.
    You and your hair look beautiful xxx

    ReplyDelete
  13. Bless you sweet girl, I have a lot of Facebook friends praying for you. I think grumpy is allowed in your situation, I'm so sorry that you feel bad. Hang on in there love, it's Friday but Sunday's coming.
    You and your hair look beautiful xxx

    ReplyDelete
  14. You are an inspiration to all ... in each day, find something small that warms your heart, talk to a friend, think of something beautiful you saw in the past and let yourself drift there in your mind. You have had a life full of adventures, stresses and challenges. You can do hard things, you are doing hard things, but allow yourself to endulge in the easy thing, the soft fur on a cat, or have a friend come over and read you one of your favorite books, close your eyes and enjoy the sound of his/her voice. When I have a particular miserable day, nothing like what you are enduring, my husband will read me New York Time articles as my eyes are closed, I find it sooo relaxing and peaceful. Seriously girl, you are doing amazing ... keep it up. PS - your haircut is so lovely.

    ReplyDelete
  15. The Bekric FamilyAugust 4, 2015 at 9:37 AM

    You are truly an inspiration and a voice for all of those, including my daughter, who cannot explain or understand exactly what is happening, you give us an understanding as to what all of the DIPG warriors are faced with. We are praying for you and want you to know that you have so many people around you who care and love and support you. Praying!!! XXXOOO

    ReplyDelete
  16. Rachel, I am so sorry your feel horrible. Cheerfulness is overrated and sometimes a dose of grumpy is just what the doctor ordered. You (and your new haircut) are beautiful.

    ReplyDelete
  17. I run track, too! The good thing about running is that even when you take a long break from the sport, you can always start up again. Perseverance is a skill that every cross country athlete Acquires. You are clearly applying it to your life. Keep it up! ��

    ReplyDelete
  18. Strength and prayers strong warrior girl!

    ReplyDelete
  19. Hi Rachel I think your hair cut looks nice.
    Sending prayers .
    I have days when I don't feel well.
    It's ok to have grumpy days.

    ReplyDelete
  20. It's hard not to have grumpy times when you feel horrible! It's ok to be grumpy. As others have said you are an inspiration...sending prayers!!

    ReplyDelete
  21. Would that I could take all of your pain away, sweetheart. So many prayers and so much love headed your way.

    ReplyDelete
  22. Rachel, you're our beautiful warrior, and even your horribly grumpy days don't diminish the light of love, hope and testimony you have. Love the hair too, I'm thinking a little excitement sounds good, tell Lauren to step it up!!! Ha!! Love you so!!! You're always in our hearts & prayers

    ReplyDelete
  23. Please get in contact with the Mayo Clinic and the Wild Type Reovirus clinical trial. It just opened up

    Please do it

    https://youtu.be/dbtH1hEGvI8

    ReplyDelete
  24. May God bless you with peace, healing, family and love. Praying for you !

    ReplyDelete
  25. Hi Rachel, I read about you on FB! I just passed by to tell you you'll be in my prayers! Hugs from Italy! :-X!!! Chiara.

    ReplyDelete
  26. Sending love to you, such a heart breaking thing to go through and hated watching my own daughter go through DIPG. You are a fighter and so many love you and are praying for you!!

    ReplyDelete
  27. I love your haircut Rachel! It looks so cute on you! You are the bravest person I know! Keep fighting girl! Thanks for being my first friend at doTERRA. You are the best! You are so strong!

    ReplyDelete
  28. Rachel you have made the world a better place.

    This will forever be on my wall:
    http://imgur.com/gOSzFkU

    ReplyDelete
  29. This comment has been removed by the author.

    ReplyDelete
  30. This comment has been removed by the author.

    ReplyDelete
  31. You ARE beautiful! Your eyes are so beautiful...they say the windows are the eyes to one's soul. You must have a stunning spirit ;) You are a pillar of strength and I know no words can help dull the pain, but Heavenly Father does know. I'll pray for you tonight ...that your burden may be made light and you may feel comfort! All my love and support. <3

    ReplyDelete
  32. Hi Rachel! I love how real your blog is! It is an inspiration to so many! Last week I was in the jungle in Brazil and I ate a firefly larva! It tasted like coconut since it lives in one. That was VERY exciting! Maybe I could arrange to get you one! Hahah...just trying to entertain you! We used to live next to Crowders when you were born. I remember how excited your mom was and she was like, "What can be better than getting two babies from one pregnancy!?" And she'd tell me how she could feed two babies in the same time you can feed one. I was pregnant with my own daughter and pretty much thought she was amazing, because I one baby at a time was difficult enough for me. I still think she is amazing and I think you are amazing as well! Have a wonderful day! I know you look for the good in all situations..a good way to be!

    ReplyDelete
  33. You are beautiful and so inspiring. I've never met you and I feel like my life is less awesome because of that. Please keep posting! I love your sense of humor. You are a blessing to so many.

    ReplyDelete
  34. Rachel,
    Please read this. I sent Cooper some more information about different compounds that have been found to kill human brain cancer cells in preclinical studies. I asked him to forward them to you and your mom and he said that he would. If you haven't read them or shown them to your health practitioner, PLEASE do so ASAP! I truly believe that the info. they contain may help to save your life!
    They are about a fruit called "mangosteen" which has numerous compounds, found in higher concentrations in its rind, that have been found to kill numerous types of caner in preclinical studies. Those studies have been going on for years, but as of mid-2014 The American Cancer Societies website stated that no studies had been performed in humans for the treatment of cancer and that it should continue to be studied.
    One of the links was to a study which showed that the compound a-mangostin from the fruit was able to kill human glioblastoma cells in a lab test and that had been transplanted into mice. Another link was to a study of a model human digestive system which showed that a-mangostin was able to absorb into the bloodstream and that it was able to pass through endothelial cells (EC's). They are an overall type of cell. A certain type of EC is what helps to make up the Blood Brain Barrier, which as you probably know is one of the main obstacles to getting treatments to DIPG tumors.
    I know a woman on Facebook named Annette 'Nardelli' McKeon. She had a daughter named Aimee who had DIPG. When Aimee was first diagnosed, at least two Dr.'s said that she already shouldn't be alive. As for standard cancer treatments Aimee only received the initial rounds of radiation. She then treated her tumor simply by eating healthy and juicing. Around five months later after learning that her tumor had progressed, her mom learned about mangosteen juice from a comment that someone had made to one of her posts. Annette (the mother) then gave Aimee around 2 oz. of the juice in the morning and evening (it's a little expensive). Aimee's health stabilized to the point that she was able to exit hospice care and return to school. She lived for 9 more months and passed away after she had stopped taking the mangosteen juice because she told her mom not to make an order of it after she learned that her mom didn't really have enough money for it.
    I believe that since Aimee was only taking such a small amount of the juice that it was basically holding her tumor at bay. A-mangostin killed the human glioblastoma cells by inducing autophagy. That is when a cell's digestive system is destroyed and the cell is at least partially digested by its own digestive enzymes. Enough juice would have to be taken long enough to kill all of the tumor cells, if that was what was helping Aimee live so much longer.
    Like I said before, I believe that this information may help to save your life. Please look into it and talk with your family and HP about it ASAP. There are many companies that sell mangosteen juice but it must contain the rind which has higher concentrations of the cancer fighting compounds. Juices like that are sometimes labeled as "Whole Fruit' mangosteen juice. I recommend the Mnagosteen 100 juice sold by Genesis Today. It's organic. I also recommend that you mix it 1:1 with orange juice for a better taste and for other possible health benefits. It was also shown to be absorbed better with a diet that contained fat. So making smoothies with it that contain things such as avocados and at least 2% milk might be good.
    Please let me know what you think. You could send Annette a friend request on Facebook too if you want to learn more about her and her daughter's experience. She is very nice.
    Thank you and may God truly bless you and your family! -Chris

    ReplyDelete
  35. Rachel,
    Grumpy is OK. When I get to grumpy with my nerve pains I retreat to my bedroom where I can lay on my bed under the fan which helps cool me off from all the sweating and heat exertion of my body. And with my five grand children staying here of Beth's family, well the second to the youngest, Little Jerry, (almost 3) commented to me on Sunday when I came out of my bedroom after two hours of hiding. We were just getting ready to eat and everyone but I was at the table, he could not help himself and said something to the effect of, "Grandpa grumpy is coming to the table to eat. Grandpa grumpy are you grumpy right now? Are you too grumpy to eat Grandpa grumpy? It became a humorous moment in our home and has continued to be a nomenclature that I will live forever in the little boy's mind. But I realized the these little ones are very sensitive to when someone may be ailing or just need some comfort. Love you so much for your outgoing personality to share so much of you life with us all.

    ReplyDelete