Tuesday, October 2, 2012

October the 2nd

Today was my MRI, and so I was pretty nervous obviously.
 IV in!
 IV out!
So I had the MRI today because of some headaches I've been getting lately. Therefore they were concerned that maybe I was having inter-cranial pressure from swelling of my tumor, but there isn't, so woohoo! They said it was "better than expected response to the treatment" which is great!
I also noticed today I finally have feeling in my fingertips and my lips again. Which is awesome (obviously!) Tomorrow morning is my last steroid. HALLELUJAH!
Still waiting for blood work on Thursday to know when the Chemo starts again because of toxicity in my liver. Today has been very hard. Very long. But also very exciting because of the news, it's just hard to be excited sometimes when you're nauseated. Oh and the hair situation, I basically have close to less than half my hair left. 8 bald spots (from each beam of radiation there is) around my ears and such. So I don't know what do with it, suggestions?
Thanks so much for the prayers and support. Honestly they are needed, answered, and felt especially today.


  1. Praise God! I am so glad to hear that!! Hope you feel even BETTER soon and are able to get some rest.

  2. Hi Rachel, You don't know me, but I was a good friend of your mom's waaaay back in high school. I heard about the challenges you are going through and I wanted to let you know that I think you are very brave and amazing. Please tell your mom hello from me and know that our thoughts and prayers are with you and your family. We never know what God has planned for us and sometimes it is so hard, but you have such a great attitude. Our hearts are cheering for you - we wish you the best. Tracie (Searle) Knowlton

  3. So happy for the GREAT news!!!!

  4. Please go like... crazy with your hair! Might as well?! Mohawk... with some dye? Haha. Go wild. P.s. I'm obviously SO HAPPY to hear all this great news :) Love you.

  5. Tough as nails, you are. I can't believe you have done all this stuff without a central line/picc line!

    What great news with the MRI! I hope though that those headaches are being helped somehow. You sure deserve to be as comfortable as possible. Think about you guys all the time... Our biggest hugs!

  6. I'm glad to hear the good news and sorry to hear you are nauseated. Matt and I always joke about giving him a comb over since he is going bald...maybe you could do a comb around... just kidding. I have no idea where the bald spots are and whether you could pull it in a pony tail a cover them up. I always thought my mom was very beautiful even when she didn't have hair and I think you could pull it off just as well. Maybe a pixie hair cut and you could wrap it.

  7. Hooray for the good news about responding well to the treatment! Just take it one day at a time :)

  8. Congratulations Rach on the great news. We're still praying for you and your family. As far as hair goes I bet Mindy could come up with something fabulous and start a whole new trend or you could take JC's advice that shaving his head was liberating and your cute enough to pull anything off. Hope the nausea goes soon. Sending you lots of love and best wishes. The Oakmans

  9. •Great MRI.
    •Feeling coming back.
    •No more steroids after tomorrow.
    •Your hair looks great in a pony tail. It's hard to tell from the pictures, but I don't see any loss.
    •You get to come home in about a week.
    •You are amazing.

    Things are really looking up!

  10. Awesome News! YeeHaw! As far as the hair goes....I would just shave it...it really is very liberating! People will look into your eyes, and see that beautiful smile and see the true you! Last Sunday was the first time I went to church after shaving mine off, it was great, because I got to share your story... you have more people praying for you and your family! Keep up the good work, and keep the posts and pictures coming, it makes my whole day!

  11. Praise God! I am happy to hear the good reports! I believe there are more miracles for you. You dont know me, but I pray for you often. Your situation has really touched my heart. God is amazing and I believe he has amzing things planned for you. I hope you continue to feel better and I pray peace over you.

  12. HOORAY for better than expected results! Miracles are taking place! You have become a trend-setter! ;) MRIs are no fun, but I'm glad there's no inter-cranial pressure. I pray they can help with your headaches and nausea soon. Those doctors at St. Jude are absolutely UH-mazing! Keep moving forward! You're in the home stretch!

    Love and hugs and prayers!

  13. My sister shaved her head when she started getting bald spots. Someone told her it would come back in better if she did. I don't know if that's true or not. You should probably ask someone there. Whatever you choose to do, I'd love to knit or crochet a couple of hats or headbands for you.

  14. I had a friend in high school who had brain cancer and she wore cute bandanas and hats. The weather is starting to cool down so you could totally get away with it!

  15. Oooh Rachel you could get a pixie cut like me and then we could be twinners :)
    Love Micaela

  16. You could always go the wig route. Even synthetic ones can look very realistic--if you find a good one that suits you. Your hair looks good to me though. Best Wishes. Even though I don't know you, I pray for you and your family.