Thursday, October 9, 2014

Movin from Memphis

Today I am particularly grateful, and that's because two years ago from today I moved home from Memphis. I am thankful that I have been home and around this long, it seems crazy that about 110 weeks ago, I thought I would only make it MAYBE 40 weeks. The time has gone by really fast and really slow, but what matters most is that the perpetual terrifying fear of dying- I no longer have. I also have been very blessed to have so many people- most of who I don't even know, pray for me.
I'm also really lucky because some of the best people I have ever talked to and am good friends with now, I have met through my blog. The expectation for this blog in the beginning was to keep all of my family and friends updated while I was going through treatment in Memphis, and I've been so blessed to have been prayed for in so many states, countries, and religions because of it.

Oh, and guess who got their port out! This girl! My doctors told me I don't need it anymore (when in April they told me I had to stop chemo but had to keep the port to be on hospice). It's crazy that I'm still alive because I had a nurse admit to me in June that in May she didn't think that I would make it a week from my April visit. So so so very blessed.

I've been thinking lately how fast time is going by. While I was in Memphis, time was still, and each minute felt like a 1/2 hour. I was miserable and depressed (dexamethasone, remember?) But I made it through! This year since August 9th, I hardly remember too much happening, I've been so busy, and time has gone by so fast, and I am so thankful for that because while I was in Memphis, I thought time would never be the same again.
I don't have too much else to say, besides thank you for the emails/comments that I still get frequently. I love to hear peoples story, where they're from and what led them to my blog, it fascinates me.

I can do hard things!


Even my bald spot where the dr. shaved putting my shunt in is growing fast!
 Me getting my port out! I'm a great patient!


  1. Replies
    1. This is such good news Rachel!!! your faith and prayers that are sent God has heard!!! May you Keep being blessed!!! angel Dominic's granny.....marla

  2. You look beautiful! I'm so happy to read how well you're doing. Still praying for you daily.

  3. I love all the pictures!! So glad you're doing so well, and that your life is coming back to normal. Glad you're back home! And your hair looks super cute :)

  4. AHH your hair looks awesome! I love this post, it's so happy!!

  5. Happy for you, you are inspiring. So grateful you have shared your journey.

  6. Hey Rachel! Greetings from St. Louis. I first found your blog when someone I know who has a brain tumor posted it, saying how inspiring you are. I just fell in love with you, girl! You are truly unique and I wish nothing but great things for you!!!

  7. That's so good to hear! I'm so happy for you. I'm reading your blog everytime i think it is very inspirational.
    Greetings from Holland!

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  10. Hi Rachel,
    So happy that you are doing so well! I truly believe that prayers are a very powerful thing. If you have a chance, I'd love you you to check out a girl's story who lives locally to me. Her name is Lauren Hill and also has DIPG cancer. Her story is very inspirational, just like yours, and think you'd like it. Here is the link from a recent local TV story here in Cincinnati. If you could say a prayer for her and her family, because like you, I believe she can do hard things. Hope you had a great weekend!

  11. Love you Rachel :) You are looking great. God is good.

  12. Awwwwwww you look so great and I'm SO happy for you girl. And YOU GOT YOUR PORT OUT!!!!!! woooooohoooooooooo!!!!!!!!!!! Keep being amazing Rachel. Praying for you always :) Ruth

  13. I just came across your blog tonight... I do not know anyone personally affected by DIPG, but became an advocate in the fight against DIPG in December of 2013 by coming across a mother's blog about her 6 year old daughter Jennifer Lynn Kranz. She only lived 3.5 months after diagnosis. I can't express the amount of gratitude I have for you due to you sharing your struggles with all of us. You have a voice and the ability to articulate your day to day, that a younger child may not be able to express... so thank you for that. I also comment because how you stated that you cannot believe that the intricacies of the brain can be possible by an accidental big bang explosion way way back in the day. I absolutely agree! The way everything and all aspects have to meet up perfectly and divide and grow to create a human being, animal or insect are beyond science! I experienced the same thing watching a video of Lou Giglio, talking about the solar system... the enormity of it all, and the perfectly aligned magnetic fields of space and size... it's no way some accidental random BOOM! If you haven't yet, check Lou out, he his fantastic! Keep sharing your story, you are and will make more of a difference and impact than you will ever know! Thank you! #love4jlk #unravelcancer #dipg

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